You can view Nick’s medical records and lab results through the patient portal. He has an account at Harrington and at UMASS. They merged and now the most recent records are all on UMASS.
I won’t post how to sign in to these accounts online. That information is at his house. There’s an index card in the kitchen cabinet that is on the living room wall. Look in the clear plastic bin.
I keep an eye on his bloodwork every month. I may change things in his diet or call his doctor if I see things that I don’t like.
- Vitamin D should be between 35 – 45. I’ll adjust his vitamin D if this is off.
- Calcium should be in the 9’s. See this page for calcium levels by AGE.
- PTH (parathyroid hormone). His PTH is never normal, and has been getting higher since January of 2024. I suspect switching from Rapamune to the generic form, Sirolimus.
- Vitamin D is critical for helping with PTH
- Phosphorus, when high, increases PTH. One of the reasons why keeping his phosphorus intake low is so important.
- Historically, his Sirolimus (aka Rapamune) level runs low. The doctor allows this.
- I ask his PCP to check is iron and B12 every so often.