Updated 7/14/24 – Hannaford Pharmacy in North Brookfield, MA. The pharmacists Sara and Danielle know him well.

Medications

ALL of his medications go through his feeding tube.

  • 5 ml Prednisolone every other day after breakfast – 8:30 – needs food in his stomach (can’t understand the dosage on the bottle, it’s written out weirdly). – PICTURE– calendar
  • 1ml Sirolimus – PICTURE – (1mg…REFRIGERATED) at 7 am on an empty stomach. He gets this on an empty stomach. His levels can be thrown off if you change this. The level should be checked monthly by Nephrology. The dose may change. Dr. Fan at UMASS knows the most recent dose.
  • 0.9 ml Mycophenolate – PICTURE – at 7am and 6pm.
  • 2-1/2 ml Levetiracetam 7am and 7pm – PICTURE
  • Testosterone gel 1.62% 20.25 mg. per pump, 2 pump presses once a day (1 to each shoulder area) – PICTURE

Supplements/Other

  • Vitamin D – 1,000IU in Nick’s afternoon snack
  • 20mg Famotadine 15 minutes before breakfast and 30 minutes before bed.
  • B12 – 250mcg every 3rd day or so. If he’s too wired, it’s probably too much. Ask to have his level tested by PCP every 6 months or so.
  • 1/32 – 1/16 teaspoon kelp granules in his breakfast for the iodine (he eats mostly plants)